Could it happen again?
Yes. It could.
Will you know ahead of time?
Probably not. We have decided that testing for SMA ahead of time is too risky to the pregnancy and will not change anything anyway. The decision to welcome another child into our family took the risk of SMA into consideration. We actually have a 75% chance of having a healthy child. We will test our baby at birth so that if SMA is an issue we can ensure the best quality of life that we can.
Wow, you're brave.
It is actually pretty exciting to toss caution aside and follow your heart. But I think that anyone who decides to welcome a child into their family is brave. You never know what can happen.
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