We gave birth to twin babies July 18, 2007 only to discover a couple of months later that Nicholas had a fatal genetic disease called spinal muscular atrophy. He passed away November 27, 2007 and a week later his twin sister Olivia was diagnosed with the same disease. She passed away January 12, 2008. This is a memoir of their lives, as well as a place to share my journey through everything that has happened.
Saturday, May 23, 2009
Am I Doing This Thing Right?
But I've also been wondering if "You're so strong..." is code for "Why don't you look sad?" or "How could you have moved on so quickly?" or "Do you miss them at all?" or "Are you out of touch with reality?"
As I visit the blogs of other grieving mothers I notice that what they are still experiencing is so different from me. Am I doing this thing right? Am I doing "too well"? Do I think about Nicholas & Olivia enough? Am I remembering them enough? If they are not physically here to demand my attention, do they get enough space in my life? My heart tells me that I am doing the best I can, with what I know, but I am plagued with whether it is enough.
Thursday, May 21, 2009
Changed - One Year Later
Sunday, May 10, 2009
Saturday, May 9, 2009
Live Interview with QX104
Corrie and I were asked to share our story for the Caring for Kids radiothon on April 30, 2009 in support of the Children's Hospital . This is a recording of our live interview with Caroline Hunter & Troy Westwood of QX104.
Live Interview with Hot103
Corrie and I were asked to share our story for the Caring for Kids radiothon on April 30, 2009 in support of the Children's Hospital . This is a recording of our live interview with Ace & Chrissy of Hot103.
Tuesday, May 5, 2009
Reason to Sing
All of my lifeIn every seasonYou are still GodI have a reason to singI have a reason to worshipfrom "The Desert Song" by
Hillsong
It's been a while since I've had to tell the whole story to someone. In the social situations where I've needed to mention that Nicholas & Olivia were in Heaven, it wasn't the time or the place to go into the details. The people we interact with the most also went through the whole thing with us at the same time we did. We were told that day at the radiothon that our story was one of the saddest they had heard. It's been a while since I've heard that comment, so I wasn't prepared with a response other than "thank you". I know that they were being kind and trying to validate our pain and empathize with our situation, but it's still a hard thing to hear when there are so many sad things going on around us.
I know now how I would respond. Our story is not a sad one. It is one of victory. And of peace. And hope. We have gone through bitter loss and have emerged whole and strong. We have not been destroyed.
I've been thinking a lot about the lyric above and what it means in the context of my life. No matter what, I have a reason to sing. I had to meditate on that for quite a while before I came to the realization that if I'm reluctant to sing in every season of my life then there's something flawed in my understanding of who God is. If I have places of distrust, or bitterness, or skepticism, then I'm missing something and I need to seek the truth persistently until my understanding is restored. Only then can I have victory. And peace. And hope.